Love in the Time of Forgetting: A Memoir of Love and Life After Loss with Lewy Body Dementia

Love in the Time of Forgetting is a lyrical, deeply personal memoir of caring for a beloved husband through the unfolding of Lewy body dementia. In these pages, Juanita Johnson invites readers into the tender, complex landscape of love that endures even as memory fades.



Through episodic letters and journal entries, Johnson traces how love deepened through the dailiness of caregiving, how presence became devotion, and how she and her husband, Earl, met the slow unraveling of his mind with honesty, grace, and shared spiritual understanding. They spoke openly about what was happening to him, to their marriage, and about his dying. Woven through the narrative are glimpses of Earl’s grounded spirituality, the solace they found in their nightly rituals of reading and deep breathing, the steadfast support of their family, and the transformation Johnson experienced in the years following his death.



More than a memoir of caregiving and grief, Love in the Time of Forgetting is a testament to how love—steady, imperfect, and enduring—can become its own form of grace.